I saw Seth’s video last night and it touched my heart. So I looked into his story further and found Seth & his Mothers blog and hope by sharing this others will take part and help.
“THIS BLOG IS ABOUT OUR 5 YEAR OLD LITTLE BOY SETH AND HIS BATTLE WITH SEVERE COMBINED IMMUNE DEFICIENCY (SCID).
AT THE POINT OF BEGINNING THIS BLOG HE IS BEING CONSIDERED FOR A SECOND BONE MARROW TRANSPLANT IN ORDER TO SAVE HIS LIFE. MY AIM IS TO PROVIDE A REAL ACCOUNT OF HIS HISTORY AND PROGRESS THROUGH DIARY ENTRIES, PICTURES AND VIDEOS SHOWING THAT THE BOY MAKES THE MOST OF HIS BUBBLE!.
I, HIS MOTHER, WILL BE THE MAIN CONTRIBUTOR TO THIS PAGE, BUT ITS NOT ABOUT ME. COMMENT, ASK QUESTIONS, DO WHATEVER YOU PLEASE THIS IS NOT MY PAGE BUT OURS. I HOPE THAT THIS PROVIDES OTHERS WITH INFORMATION ON TACKLING A CONDITION THAT 30 YEARS AGO WOULD HAVE LEAD TO DEATH. AS WELL AS GIVING FAMILY AND FRIENDS A PLACE TO KEEP UP TO DATE WITH THE NEWS OF HIS JOURNEY. #WEARYELLOWFORSETH”
- Supporting Seth: A local event being held at the local Conservatve Club arranged by a friend of our family Jade Ruthven. Here is a link to the event: https://www.facebook.com/events/441781025970187/
- Right Medicine Pharmacy who are a chain of pharmacy’s based mainly in central Scotland. They are going to be sharing this blog to their staff members and encouraging them to wear something yellow on 27th March. There will be the opportunity for patients to also donate and staff will help engage them in Seth’s story and the Bubble Foundation. The proceeds will go to the Bubble Foundation.
#wearyellowforseth on 27th March 2015.
Post your pics to facebook, Twitter or Instagram with the above #. We will show Seth all the pictures and hopefully give him the energy to keep going!! He also has a map in his room where we will pin locations of photos.
You can read about Seth at ourlittlehero.wordpress.com
And more information on scid here: http://www.bubblefoundation.org.uk/
I wish Seth all the luck in the world and hope everyone can help boost this little guys spirits by wearing yellow for him! I’ll post an update of the #wearyellowforseth day shortly after, so get your yellow outfits at the ready!